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Social Media Sheds Light on Sufferers During #MEAwarenessWeek 2015

This week is ME Awareness Week and yesterday (May 12th) was ME Awareness Day, so Social Songbird have decided to have a look at the online campaigns that are helping to raise awareness for this disease and do our bit for an often overlooked condition.

ME is hugely misjudged and assumptions are made about the sufferers of this illness. I knew very little about this disease myself, so when I found out that there are over 250,000 people who suffer from ME in the UK, I knew it was time to educate myself and help spread the word.

If you want a definition of ME, let me try my best: it’s a pretty invisible condition – it all happens on the inside. Fatigue and post-exertional malaise are among the most well-known symptoms of ME. Most victims also suffer from aches and pains particularly in their joints. Others have sleeping problems or terrible insomnia. The lack of sleep and the stress can cause headaches which in turn will leave ME patients foggy and disconnected from the real world.

There’s so much more, but you’ll learn pretty quickly if you look into these online campaigns that I’m about to suggest.

People diagnosed with ME were encouraged to post a blog article about their story and share it using the hashtag #May12BlogBomb. This led to a mass influx on Twitter of emotional stories relating to these people who are often ignored or discouraged because their illness is just not considered serious enough. The Blog Bomb was set up last year by Sally Burch on her blog “Just ME” which features her own story and thoughts about the illness. She asks people to use the hashtag and hopes to get it trending this year. She also posts links to the other blogs on her own site.

Because it is nearly impossible to notice an ME sufferer in the street, one of the other big campaigns in this year’s awareness week has been called #NowYouSeeME – and you guessed it – it’s all about shedding some light on this condition and making visible those who are affected by it.
It is a fantastic idea started by AYME, an association for young people with ME. The online campaign is helping many to voice their opinion instead of bowing down to the constant “You’re faking it” stigma that is attached to this extremely restrictive illness. 


Simply by searching for these hashtags on Twitter you can hear thousands of heart wrenching stories, see the pictures and hopefully share them too. 25% of sufferers are housebound, wheelchair bound or bed bound, so as you can imagine it will mean a lot just to have their voice heard. We are proud to be doing our bit, so pass the message on! 

Megan Herdson
Megan is a country girl who moved to the city with some big dreams. She is studying her MA in Creative Writing whilst also managing an American Football Team.  She loves her blog and wants nothing more than to have her words read. That and to win the Championship, obviously. Follow her @MeganAtSMF

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Social Media Sheds Light on Sufferers During #MEAwarenessWeek 2015 Reviewed by Unknown on Wednesday, May 13, 2015 Rating: 5

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